The Characteristics and Motives of Those who Hosted Adults with Intellectual Disabilities, During the First Ten Years of an Irish Family-based Short-breaks Service.

Author(s): Des Hanrahan

Department: St. John of God North East Services, Drumcar, Dunleer, Co. Louth with School of Applied Social Science, University College Dublin, Belfield, Dublin 4.

Keywords: Family-based short breaks, recruiting, intellectual disability, learning disability, adults, respite, characteristics, motives, motivation.

Reported: Hanrahan, D (2008) The Characteristics and Motives of those who Hosted Adults with Intellectual Disability, During the First Ten Years of an Irish family-based Short-breaks Service. Poster presentation,18th. SJOG Annual Research and Evaluation Study Day, 14th. October: Stillorgan.

A study of the association between working with people with communication difficulties and intellectual disabilities (ID) and burnout amongst direct care workers?

Author(s): Elizabeth Lernihan

Department: Kerry Parents and Friends Association.

Keywords: Communication, Burnout and Intellectual Disability.

Best Buddies:A pilot project linking Our Lady of Good Counsel School and Ballincollig Community school.

Author(s): Deirdre Lovett, Ian Kelleher, Debbie Manning, Diarmuid O’Leary, Aoife O’ Sullivan,Alex Roe, Clare O’Keefe,PRO Best Buddies, B.C.S., Yvonne McCarthy , Brothers of charity Services, Cork

Department: Brothers of Charity and Ballincollig Community School, Cork.

Keywords: Disability, friendship

Reported: Frontline Spring 2007

Challenging Behaviour: prinicpals’ experience of stress and perception of the effects of challenging behaviour on staff in special schools in Ireland.

Aine Kelly, PhD. , Sean Carey PhD, Siobhan McCarthy, MSocSc

Department: Research Department, St John of God Hospitaller Services, Stillorgan, Co. Dublin. St Patricks College, Drumcondra, Dublin.

Keywords: Special schools, principal stress, perceived effects on teachers, challenging behaviour.

Reported: European Journal of Special Needs Education, vol. 22, 2, May 2007, p161-181.

The Ageing Experiences of Women with and Without an Intellectual Disability

Author(s): Mary Hayes

Department: Psychology Department, Brothers of Charity Services, Bawnmore, Limerick

Keywords: Experience, ageing, women, intellectual disability.

Moving from residential to community living. Quantitative & Qualitative Perspectives regarding Quality of Life

Author(s): Flynn, E., & Coughlan, B.

Department: Department of Psychology, Brothers of Charity Services, Bawnmore, Limerick.

Keywords: Residential & Community living, de-institutionalisation, intellectual disability, quality of life.

Use of Medication in behaviour disorders in intellectual disability

Author(s): Dr Chimdi Uhoegbu, Brendan McCormack

Department: Psychiatry Department, Cheeverstown House Dublin 6W

Keywords: Intellectual Disability, Medication, Behaviour Disorder

Reported: Presented as Poster at AMNCH Department Psychiatry June 2007

Cognitive Behaviour Therapy for chronic pain for people who have an Intellectual Disability

Author(s): Dr. Sharon Mc Manus, Dr. Brian Mc Guire, Dr. Meena O Neill

Department: NUIG in association with the Brothers of Charity, Galway , Ability (formerly Galway Association)

Keywords: Pain, CBT, Intellectual Disability

Reported: Preparations are in progress to publish this research.

The Prevalence of Wounds and their Nursing Management in a Community Care Setting in Ireland.

Author(s): Linda Mc Dermott-Scales1, RGN, H Dip Wound Management & Tissue Viability, MSc Nursing. Professor Seamus Cowman2 PhD, MSc, FFNMRCSI, PGCEA, RNT, DipN (London), RGN, RPN.

Department: Stewart's Hospital was a large part of this multisite study

Keywords: Wounds and Epidemiology

National Best Practice Guidelines for Informing Families of their Child’s Disability

Author(s): Alison Harnett, Brendan Dolan, Suzanne Guerin, Edel Tierney, Maria Walls

Department: National Federation of Voluntary Bodies Providing Services to People with Intellectual Disabilities, Research Department

Keywords: Informing Families, Childhood disability, Diagnosis, Parents, Children with disability, Communication skills, Training, Disclosure, ‘Breaking Bad News’

Reported: Articles about the Informing Families research and guidelines were written in the following publications in 2008: • Psychiatric Nurses Association: PNA Journal, Vol 6 Issue 1 Winter/Spring 2008 "Federation of Voluntary Bodies Providing Services to People with Informing Families National Best Practice Guidelines" Pg 29-34 • National Council for the Professional Development of Nursing and Midwifery: NCNM Review, Spring/Summer 2008 "Best Practice in Informing Families of their Child's Disability" Pg. 16 • Frontline Magazine, Issue No. 73 2008 "Words you never forget - Best practice guidelines to support professionals when informing families of their child's disability" Pg 8-10 • Down Syndrome Ireland, Summer 2008 Magazine "Launch by National Federation of Voluntary Bodies" Author Orla Crowe, Pg 28. Citations • RehabCare 2008: “An investigation into the social support needs of families who experience rare disorders on the island of Ireland”. This report recommended the implementation of the Informing Families Guidelines as one of its 9 key recommendations. • National Council for the Professional Development of Nursing and Midwifery and Nursing and Midwifery Planning & Development Unit, HSE (South), (2008) Clinical Nurse/Midwife Specialist Role Resource Pack 2nd Edition. Kilkenny