Supporting Persons with Intellectual Disability and Advanced Dementia: Fusing the Horizons of Intellectual Disability, Dementia and Palliative Care.

Authors: McCarron, M. Fahey-McCarthy, E. Connaire, K. McCallion

Organisation: School of Nursing and Midwifery, Trinity College, Center for Excellence in Aging Services, University at Albany, USA; St. Francis Hospice, Raheny

Keywords: Advanced Dementia, intellectual disability, staff, palliative care

(21 Aug 2008)

This study began with an effort to understand staff experiences in supporting persons with intellectual disability and advanced dementia. A cross section of intellectual disability service providers and a specialist palliative care provider in the Republic of Ireland were involved in the study. Their experiences were interpreted to gain an understanding of their education and training needs and this information was then the basis for an educational intervention which was designed, delivered and evaluated as a pilot effort with these services. A partnership approach which involved the Trinity College School of Nursing and Midwifery research team, intellectual disability service providers and a specialist palliative care service was crucial to the success of this study.

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