Author(s): Alison Harnett, Brendan Dolan, Suzanne Guerin, Edel Tierney, Maria Walls
Department: National Federation of Voluntary Bodies Providing Services to People with Intellectual Disabilities, Research Department
Keywords: Informing Families, Childhood disability, Diagnosis, Parents, Children with disability, Communication skills, Training, Disclosure, ‘Breaking Bad News’
Reported: Articles about the Informing Families research and guidelines were written in the following publications in 2008:
• Psychiatric Nurses Association: PNA Journal, Vol 6 Issue 1 Winter/Spring 2008 "Federation of Voluntary Bodies Providing Services to People with Informing Families National Best Practice Guidelines" Pg 29-34
• National Council for the Professional Development of Nursing and Midwifery: NCNM Review, Spring/Summer 2008 "Best Practice in Informing Families of their Child's Disability" Pg. 16
• Frontline Magazine, Issue No. 73 2008 "Words you never forget - Best practice guidelines to support professionals when informing families of their child's disability" Pg 8-10
• Down Syndrome Ireland, Summer 2008 Magazine "Launch by National Federation of Voluntary Bodies" Author Orla Crowe, Pg 28.
Citations
• RehabCare 2008: “An investigation into the social support needs of families who experience rare disorders on the island of Ireland”. This report recommended the implementation of the Informing Families Guidelines as one of its 9 key recommendations.
• National Council for the Professional Development of Nursing and Midwifery and Nursing and Midwifery Planning & Development Unit, HSE (South), (2008) Clinical Nurse/Midwife Specialist Role Resource Pack 2nd Edition. Kilkenny