Author(s): Teagle, R.
Department: Burren View CDC
Keywords: Children, Chronic Illness, Parents, Partnership, Information, Education
Recent advances in medicine and health care have significantly
reduced childhood mortality rates resulting in childhood chronic
illness becoming synonymous within today's society. Childhood chronic
illness impedes on family life as a functioning unit as the impact of
the illness disturbs the integrity and well-being of the family.
Parents have been identified within the literature as the primary
source of care for the child and this review aims to highlight the
burden of care in relation to parental experiences of stress and
chronic sorrow.
The literature revealed conflicting results
in respect of parental perceptions to partnership in Gare as opposed to
those enacted in nursing practice. Partnership is deemed as crucial in
supporting parents and fundamental to our role as nurses. Partnership
is pivotal to the planning and delivery of care to chronically ill
children.
Parents perceived their need for infom1ation and
respite care as vital in assisting them in caring for a chronically ill
child. It helped to reduce the challenges of caring, with nurses
playing an instrumental role in the provision of accurate and timely
information and in the organisation and provision of respite care.
It
is widely recognised that dedication, vigilance, knowledge and skill
are required by parents caring for children with chronic conditions,
may we base our interventions as nurses on the understanding that the
recommendations forwarded in this review are vital to improving
research, education and practice within the speciality of paediatric
care.